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Nearly 1 in 10 Americans lives with a rare disease
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(BPT) - Did you know that the same number of people die each year from idiopathic pulmonary fibrosis, or IPF, as breast cancer? And yet IPF, a rare and debilitating disease that causes permanent scarring of the lungs, is still relatively unknown. Fortunately, the focus on rare diseases ...
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How to support your friend in a split
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(BPT) - When a marriage ends in divorce, it’s not just the couple who is involved. Friends and family members are also part of the process and often play many different parts – from objective confidant to reliable “vent-ee.” If you’re suddenly or unexpectedly thrown ...
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Technology can turn $25 into a family giving tradition
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Technology has been connecting families for generations. The invention of the phone let us hear voices of loved ones far away, and the creation of the Internet helped us to see them. Today, those same technologies that we’ve used to bring our families closer together are helping us to ...
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Rare diseases: Increasing awareness for better patient outcomes
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(BPT) - Getting a diagnosis of any cancer can be frightening, but for those diagnosed with a rare cancer, the emotional toll can be much worse. For some of these patients, the journey to a correct diagnosis may take years, and once they receive an accurate diagnosis, it can be extremely ...
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How your unused airline miles can help a child
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(BPT) - Helping a child in need may be easier than you think, by redirecting a common resource that often just goes to waste. Industry experts say Americans collectively are holding on to 9.7 trillion unused airline miles. Many people don’t have enough miles to qualify for reward ...
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Igniting the conversation about rare diseases
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(BPT) - Each year, people across the world are invited to join together to raise awareness about rare diseases. Unlike more common conditions such as diabetes and breast cancer, many of these diseases, as well as the people affected by them, are not recognized by their own awareness initiatives ...
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The career paths that lead to everyday acts of heroism
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(BPT) - Often, we don’t think about heroism until we see it in action - when disaster strikes and ordinary people exhibit extraordinary courage and compassion to help victims in their time of need. The truth is, however, that the best of human nature is on display every day in the lives of ...
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Five reasons Asian Americans should get tested for hepatitis B
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(BPT) - More than 1 million Americans have a lifelong, or chronic, infection of hepatitis B. This includes one out of every 12 Asian Americans. If you or your parents were born in Asia or the Pacific Islands, the Centers for Disease Control and Prevention (CDC) recommends that you get tested for ...
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Easy ways to make a difference this summer
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(BPT) - Summer provides a much-needed break for families and a perfect opportunity to make a difference in the community. Depending on interest and time, there are many different ways to get involved or make a charitable contribution, including the following: * Participate in a fundraiser ...
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Rare Disease Day 2013: Maintaining bone health in people with multiple myeloma
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(BPT) - In honor of the sixth annual Rare Disease Day, celebrated on Feb. 28, it is important to drive awareness about some rare cancers that are many times undiagnosed until the cancer has already spread. One particular cancer, multiple myeloma, often goes undiagnosed until the disease has ...
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